My name is Dianne Carrington and I’d like to share my story with you. It’s a story of despair, hope, loss, sadness, longing and finally joy after not one, but two Wet Macular Degeneration eye bleeds along with Dry Macular Degeneration. Let me explain…
Meet my Mum, Merle who is one of the strongest, most determined women I know and EVEN SHE was brought to her knees by Macular Degeneration as her independence shriveled up and her world became smaller and smaller.
Maybe you can understand where I’m coming from here, but for us, Mum means the world and plays a major role in our family!
When we started this journey together…I didn’t know a thing about Wet Macular Degeneration
But in the end, Mum finished first. She trained like an athlete, sought out the ideal coaches and found solutions to living life fully once again.
All of us who love Mum thought it would be easy to help her with this debilitating condition of Age Related Macular Degeneration, AMD.
It was only later that I discovered that many of the things we were doing in the early stages were actively preventing us from helping Mum adapt and regain her independence which was what she wanted more than anything.
After twelve months of frustration, the situation was starting to affect Mum’s relationship with Dad. She states, "I was moody and short tempered. I seemed to be frequently on the verge of tears, especially if I was frustrated with something that had been so easy to do and now proved to be an insurmountable challenge, like pouring a cuppa
What was I doing wrong? How come everyone else could do simple things and I couldn’t? What was wrong with me? And I started to blame my husband and others for being impatient with my efforts and telling me to just go and sit down, and they would do it. After all, things would get done right, without any muss or fuss and so much faster if someone else did them.
Eventually we got all these feelings of resentment out in the pen. We had many long heart to heart talks and ultimately decided we needed to get some answers.
Worse yet, more and more well-intentioned helpful friends told me to go sit down and they would do it. For me, it was still my life and I didn’t know how to vegetate on the sidelines, sitting and waiting. If help meant taking away my independence, then you take away my purpose for living and my joy of accomplishment.
When I went for my injections, I had noticed a brochure on the counter, No one said anything to me about the Vision Australia brochure, and I gave it no real notice believing I didn’t need that at least NOT… Read more…
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